My Car Crash Lead To My Oligodendroglioma Diagnosis

Rory Burke had a grand-mal seizure out of the blue while driving to work. It was while at the hospital he was diagnosed with an Oligodendroglioma.

Here is Rory’s story:

How did you find out about your diagnosis?

It all started in February 2012. I passed out at the wheel while driving to work. At the time I had no idea what had happened, but fortunately, no one was hurt. I was just five minutes from the motorway so very blessed that I was not far from home.

I was taken to the hospital and looked over. I also had an MRI. It was there that they found I had a brain tumour. It was clear at that point that my crash was due to a grand-mal seizure.

I was then booked in to have an awake craniotomy to remove the tumour. The operation was not successful and I needed to have a second awake craniotomy. They were only able to remove part of the tumour as it is on my motor strip and too dangerous to remove fully.

I would go for MRI check-ups every 6 months and in 2016 the tumour started to grow again so I had radiotherapy in November/December then PCV chemotherapy in early 2017.

Now I am still on 6 monthly MRI and continued management of my epilepsy. Therefore, at this time, I still have a brain tumour and go for MRI checkups every six months to see it is not grown any further if it does I may need to have more treatment.

How are you feeling now about everything?

I have chronic fatigue. I am also on medication for seizures. I am taking Lacosamide; Keppra; Clonazepam; Sertraline, Fycompa to keep the seizures under control.

I have had slight balance issues. Weak left arm, my hand especially. I had a paralysed left arm which over the last 7 years worked to rehabilitate it which I have spent years rehabilitating that part.

Any advice for people or loved ones that get daunting diagnoses?

If you are living with a brain tumour? Don’t look on the internet about brain tumours. Go to your doctor or brain tumour support charities.

What do you do now in your life?

I now focus on living a positive journey whatever that may be from day today. I continue to work on my rehab and support Brain Tumour Research raising awareness and money for them.

I like to challenge my mind and body. I have raised funds by doing a number of things including ‘Ride A Bike’ challenge three times. I have also got my company involved with ‘Wear a Hat Day‘.

I have raised funds by doing a number of things including 'Ride A Bike' challenge three times. I have also got my company involved with 'Wear a Hat Day'
  • Save
Rory Burke was disgnosed with Oligodendroglioma. Here is his story
  • Save

What motivates you?

I am motivated by living a positive life and living life as it comes.

Who is your personal hero or are your heroes?

They are two sets of people:

  • The NHS and my team that have been involved in my journey.
  • London Irish Rugby Club  (Of course friends and family)

Tell us something about yourself that people probably didn’t know… anything?

I played against Argentina at rugby when I was younger at U18 age group for Middlesex.


Conclusion: Thank you, Rory Burke, for sharing your story. It is amazing you were ok after your grand-mal seizure while driving. May that Oligodendroglioma stays quiet forever.

  • Save

 

 

Click to rate this post!
[Total: 1 Average: 5]

Leave a Reply

Your email address will not be published.

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Brain Tumor Stories
Share via
Copy link
Powered by Social Snap