Podcast: My Acoustic Neuroma Led Me To The Beyond Recovery Project

In this Aunty M Brain Tumour’s Talk Show episode, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects. Susan shares her story of recovery and her involvement in The Beyond Recovery Project, a non-profit community supporting brain tumour survivors. She encourages listeners to visit the project’s website for support or involvement.

Aunty M Brain Tumour’s Talk Show with Guest Susan Hitchmough

DIAGNOSIS

  • Susan’s diagnosis: September 24, 2021.
  • The shock of being diagnosed with a brain tumour.
  • Husband was away when she received the diagnosis.
  • Researching her condition and dealing with the news.
  • Initial symptoms: loss of balance, swallowing difficulties, dizziness.

TREATMENT

  • Diagnosis during COVID and phone consultations.
  • Initially diagnosed with an ear infection.
  • Eventually referred to an ear, nose, and throat specialist.
  • MRI scan confirmed the diagnosis.
  • Shunt placement to reduce fluid in the brain.
  • Brain tumour removal surgery in February 2022.
  • 95% of the tumour was successfully removed.
  • The remaining 5% is left around the facial nerve.
  • Regular MRIs to monitor any growth.

POST-SURGERY CHALLENGES

  • Challenges after surgery: hearing loss, dry eye, loss of taste.
  • Coping with tinnitus and its impact.
  • Dealing with anxiety and sensory overload.
  • Susan’s journey to regain confidence and overcome anxiety.
  • Importance of celebrating small victories.

THE BEYOND RECOVERY PROJECT

  • Susan and Sara Crosland’s initiative to support brain tumour survivors.
  • Creating a community for survivors and their families.
  • The Beyond Recovery Project’s goals and activities.
  • Upcoming challenges and events, including mountain treks and marathons.
  • Encouraging sponsorship and donations to support their cause.
  • Retreats and camps to connect survivors and families.

HOW TO SUPPORT THE BEYOND RECOVERY PROJECT

  • Visit their website: www.thebeyondrecoveryproject.org.
  • Subscribe to their newsletters for updates.
  • Follow them on social media and reach out for support.
  • Donations and sponsorships are welcome.
  • Upcoming event: a run along Hadrian’s Wall in October.
  • Creating a supportive community for brain tumour survivors.

CONCLUSION

  • Susan’s inspiring journey and determination.
  • Recognizing the need to adapt to the “new you” post-surgery.
  • Thanking Susan for sharing her story.

LINKS & RESOURCES:

The Beyond Recovery Project

 

 

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A post shared by Claire Bullimore (@braintumoraunty)

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