Real stories from people and families affected by ependymoma.
Here you can read and listen to personal experiences of diagnosis, symptoms, brain or spinal surgery, radiotherapy, proton beam therapy, recovery and life after an ependymoma diagnosis.
Ependymomas are rare tumours that develop from ependymal cells, which line the fluid-filled spaces of the brain and the central canal of the spinal cord. They can affect both children and adults, and treatment depends on factors such as the tumour’s location, type and individual circumstances.
Every experience is different. Some of the stories here are told by people living with ependymoma, while others are shared by parents, partners and families supporting somebody through diagnosis and treatment.
Browse the stories below and hear directly from people and families affected by ependymoma.
