In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support. Kimberley’s journey began with migraines, a constant presence since her teens, escalating over time alongside undiagnosed absence seizures. Despite seeking medical help, her symptoms were dismissed until a severe migraine led to a seizure, prompting the necessary scans.
Kimberley’s Astrocytoma Story
Shownotes:
Symptoms and Diagnosis:
- Kimberley has a history of migraines and absence seizures since a young age.
- Initial dismissal of symptoms by healthcare professionals as anxiety or panic attacks.
- Intense migraine episodes lead to seizures and hospitalization.
- Challenges faced in getting a timely diagnosis, including repeated visits to GP and A&E.
- Delayed scan and eventual diagnosis of a brain tumour.
Treatment and Recovery:
- The experience of MRI scans and receiving the diagnosis.
- The impact of the diagnosis on Kimberley’s life and mental health.
- Surgery and challenges faced during recovery, including sepsis and infections.
- Delayed radiotherapy due to complications.
- The role of family, friends, and healthcare professionals in supporting Kimberley.
- Coping mechanisms and finding purpose in fundraising and awareness campaigns.
Challenges Faced:
- Loss of independence and identity, including losing the ability to drive.
- Isolation and adjusting to life post-diagnosis.
- Advocacy for improved awareness and support for brain tumour patients.
- Fundraising efforts and involvement with support groups.
