Real stories from people affected by hemangioblastoma.
Here you can read and listen to personal experiences of symptoms, diagnosis, brain or spinal surgery, treatment, recovery and life after a hemangioblastoma diagnosis.
Hemangioblastomas are rare, usually non-cancerous tumours that arise from blood vessel-related cells. They most commonly develop in the brain, particularly the cerebellum, or in the spinal cord. Some occur on their own, while others are associated with von Hippel-Lindau (VHL) disease.
Symptoms can vary depending on the tumour’s size and location and may include headaches, balance or coordination problems, weakness and changes in vision. Treatment is often surgical when the tumour is causing symptoms or pressure.
Browse the stories below and hear directly from people affected by hemangioblastoma.
