Real stories from people and families affected by DIPG.
Here you can read personal experiences of diagnosis, treatment, family life, advocacy and living with the impact of Diffuse Intrinsic Pontine Glioma.
DIPG is a rare, aggressive brain tumour that develops in the pons, an area of the brainstem responsible for many essential functions. It most commonly affects children, although it can also occur in adults. Because of its location within the brainstem, surgery to remove the tumour is generally not possible.
Behind every diagnosis is a person and a family. These stories share the experiences of those affected by DIPG, as well as people working to raise awareness and improve understanding of this devastating disease.
Browse the stories below and hear directly from people and families affected by DIPG.
