Janice Johnson, 35, and Eleanor (Elly) Heans-Glogowska, 35, from London have been best friends for over 15 years. During this time they both heard the words ‘You Have A Brain Tumour’. Now they are both fundraising for the charity ‘Brainstrust’ during ‘Brain Tumour Awareness Month’ this March.
They are trying to raise £30,000 via crowdfunding. I know the challenges of doing crowdfunding as I did my own Crowdfunding Campaign in 2014. I wanted to do a UK Book Tour which I needed help with. Thankfully and with lots of support I reached my target.
First things first, here is why they are doing this massive challenge.
Tell Us About Your Diagnosis
Janice:
I was diagnosed with an atypical meningioma (grade 2) in 2019 after waking up with temporary paralysis and her leg and foot contorting. It initially was overlooked by the A&E doctors she saw, since she did not lose consciousness. It was later recognized by a neurosurgeon as a seizure, especially when the second occurrence happened while trying to park her car.
My tumour is above the motor strip on the right side of my brain. Over time it affected my concentration, ability to process information, focus and vision.
I’ve experienced partial paralysis (not permanent), which reduced my ability to walk, and a lack of balance causing regular trips and falls (which led to injuries and limping).
It also caused me to develop focal epilepsy. This causes focal aware seizures, which mean you are awake and alert while they are happening. They can happen any time and other people might not notice them, so if I need help, I have to tell them what’s happening or if I need to be taken to hospital.
Eleanor
In 2012 I had a slightly swollen eye which I put done to a contact lens irritation, but, after tests at a routine eye examination, I was diagnosed with a meningioma that was growing into my skull bone. My tumour causes proptosis of my right eye and pain in my jaw. The biggest risk for me is the location as it is compressing my optic nerve causing sight loss”.
Where Can We Learn More About Your Campaign?
You can find us on our website: Brain Tumour Twins and Prize Draw website
or find us on Social Media: Twitter Instagram Facebook
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Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
