Lindsay Miller shares her story in this powerful Aunty M Brain Tumours Talk Show Podcast episode. Lindsay was diagnosed with Lhermitte-Duclos disease (also known as dysplastic gangliocytoma of the cerebellum) and hydrocephalus, conditions that led her through a series of life-altering surgeries and a profound shift in her life’s path.
Lindsay’s Lhermitte-Duclos Story
Key Points:
- Early Life and Love for Dance
Lindsay recounts her childhood passion for dance, competing in ballet, tap, and jazz until her teens. In college, she embraced a new love for theater and later ballroom dancing, which became a joyful escape and a lifelong passion.
- First Signs of Trouble
Early in the year, Lindsay began experiencing unusual cognitive symptoms—brain fog, forgetfulness, and balance issues—which escalated to dizzy spells and falls. Initial testing revealed Hashimoto’s disease, but further tests led to a shocking discovery: a rare brain tumour and hydrocephalus.
- Diagnosis and Treatment Journey
Lindsay describes the terrifying moment she was diagnosed with Lhermitte-Duclos disease. She underwent multiple surgeries, including a craniectomy and VP shunt procedures, and faced complications such as infections that required multiple hospitalizations.
- Finding Support and Whole-Person Care
Through a dedicated neuro-oncology clinic, Lindsay receives comprehensive care that includes medical, psychological, and neurocognitive support. She shares her appreciation for a team that treats her as a “whole person,” not just a rare medical case.
- Lessons and Mantra for Resilience
As she recovers, Lindsay reflects on how she’s learned to process emotions authentically, letting herself feel the highs and lows without masking. Her mantra, “This too shall pass,” has become a guiding light through dark times, teaching her not to “unpack and live there” but to keep moving forward.
- A Look to the Future
As she convalesces, Lindsay considers what’s next, with hopes to reimagine her life and career. With support from friends, family, and a dedicated therapist, she’s found strength, perspective, and resilience on this challenging journey.
Join us as Lindsay Miller opens up about her trials, triumphs, and hard-won insights. Her story is a testament to resilience and the power of a supportive community. This episode is a must-listen for anyone facing health challenges or seeking inspiration in adversity.
Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
