I Have A Diffuse Astrocytoma On My Brain Stem


Emily Suess is a blogger and a doodler and an inspiration to many. Emily was diagnosed with a grade 2 Diffuse Astrocytoma on her brain stem in 2017.

Hi Emily, When did you start your blog?

I’ve been blogging in some form or another since about 2006. This particular incarnation of my BLOG has been around since about 2014 when my symptoms were still a mystery, and I was working through a misdiagnosis of fibromyalgia.

What is your blog about?

My blog is about me, my healthcare journey, my fight to get a real diagnosis, my eventual brain tumour diagnosis and subsequent treatments, and my recovery and “new normal” trying to make the most of my disabled life.

What motivates you to blog?

I’m a writer by profession and have always gravitated toward blogging to mark exceptional moments in my life as well as practice my craft. I hope that by sharing what I’ve learned, I can help other people with chronic illnesses advocate for themselves and bring awareness to others about what it’s like to have brain cancer. I also use my blog to promote my current projects and I am currently working on writing a memoir, creating a YouTube channel related to Zentangle art, and building a system of financial support for my work on Patreon.

What is the hardest thing about being a blogger (if any)?

The hardest part is generating content consistently while being sick. I always have so many more ideas and thoughts and stories to share that I can get them published on my website.

Who is your personal hero or are your heroes/inspirations?

It might sound cheesy, but my husband Dan is my personal hero. He had done everything for me, without complaint or begrudging, from buying me pyjamas and underwear when I was first admitted to the hospital to making the bed every week while I was so sick during chemotherapy treatments, that I was unable to do it for myself.

What would you say is the most exciting thing you’ve ever done?

I wrote a two-page letter at a job I once had. In it, I outlined the horrible things the company had done and how my bosses were incompetent. I emailed it to my bosses and Human Resources at 4:30 on a Friday, just before leaving work for the day. I never returned.

What is the toughest challenge survivors face?

Aside from having a brain tumour/brain cancer, the most challenging part is feeling understood. So much of the experience just doesn’t translate into words, that it’s hard to explain the thoughts, feelings, and struggles that we face every day–both to family and friends and to strangers.

What is next on your agenda?

Publishing my memoir which details some of the more unbelievable aspects of my life so far: being married to a pathological liar (my first husband) for four years and fighting the U.S. healthcare system for years to get a diagnosis for my brain tumour.

Tell us something about yourself that people probably didn’t know… anything?

I was once on the local news when I worked in a cemetery because someone was stealing grave decorations and our office was being interviewed. My 15 seconds of fame. Ha!

Conclusion: Emily is really open about her feelings and the process she is going through while fighting Diffuse Astrocytoma. In addition, she shares her deepest thoughts with the world in the hope it will benefit others. Although I doubt she realises how helpful her blog posts really are to others.

You can follow Emily and her Diffuse Astrocytoma story here on Social media:




Have you heard of Diffuse Astrocytoma?

I Have A Diffuse Astrocytoma On My Brain Stem
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