Real stories from people and families affected by craniopharyngioma.
Here you can read and listen to personal experiences of diagnosis, brain surgery, radiotherapy, hormone changes, recovery and life after a craniopharyngioma diagnosis.
Craniopharyngiomas are rare brain tumours that usually develop close to the pituitary gland and hypothalamus. Although they are generally non-cancerous, their location can affect important functions including vision, hormones, growth, energy levels and weight regulation.
Every experience is different. Some people are diagnosed in childhood, while others are diagnosed later in life, and treatment and long-term effects can vary considerably.
Browse the stories below and hear directly from people and families who have experienced a craniopharyngioma diagnosis.
