In this episode of the Aunty M Brain Tumours Talk Show, we hear from Andy Tudor, who shares his personal battle with a brain tumour. Initially dismissing his symptoms as age-related, Andy’s life took a dramatic turn when he was diagnosed with a meningioma. He recounts the challenging period leading to his diagnosis, the impact of waiting for surgery, and the relief steroids brought to his symptoms. Post-surgery, Andy discusses his recovery and also delves into his decision to retire due to fatigue and his subsequent dedication to volunteering.
Andy Tudor has been a brain tumour advocate since his personal battle
SHOWNOTES:
Early Signs and Misdiagnosis
- Symptoms: Fatigue, memory problems, limping, coordination issues while driving.
- Misdiagnosis: Initially attributed to ageing and later suspected to be rheumatoid arthritis.
Diagnosis
- Emergency Symptoms: Severe headache and vomiting leading to hospitalization.
- Diagnosis in Hospital: Initially suspected stroke, later diagnosed with a large cranial mass (meningioma).
Treatment and Waiting
- Steroids: Prescribed to alleviate symptoms.
- Waiting Period: Six weeks at home before surgery could be scheduled.
Surgery and Hospital Stay
- Surgery: Successful removal of the meningioma.
- Post-Op Recovery: Quick, with discharge two days after surgery.
Life After Surgery
- Challenges: Fatigue and adjustment to post-surgery life.
- Early Retirement: Due to the after-effects of the surgery and ongoing symptoms.
- Volunteer Work: Active involvement with the Brain Tumor Charity, Brainstrust and Radiotherapy UK.
Tumor Regrowth and Further Treatment
- Regrowth: Detected five years post-surgery.
- Treatment: Targeted stereotactic radiotherapy (gamma knife).
Volunteering and Recognition
- Activities: Volunteering with brain tumour charities.
- Awards: Recognition for contributions to charity work.
Volunteering opportunities Mentioned:
Brainstrust Peer Support Page and Andy’s profile: HERE
Personal Impact and Support
- Family Support: Essential role of Andy’s wife and children.
- Fatigue Management: Strategies for dealing with post-surgery fatigue.
- Volunteering Benefits: Therapeutic value and personal fulfillment.
Andy’s Brain Tumour Story on YOUTUBE