In this episode of the Aunty M Brain Tumours Talk Show, we hear from Andy Tudor, who shares his personal battle with a brain tumour. Initially dismissing his symptoms as age-related, Andy’s life took a dramatic turn when he was diagnosed with a meningioma. He recounts the challenging period leading to his diagnosis, the impact of waiting for surgery, and the relief steroids brought to his symptoms. Post-surgery, Andy discusses his recovery and also delves into his decision to retire due to fatigue and his subsequent dedication to volunteering.
Andy Tudor has been a brain tumour advocate since his personal battle
SHOWNOTES:
Early Signs and Misdiagnosis
- Symptoms: Fatigue, memory problems, limping, coordination issues while driving.
- Misdiagnosis: Initially attributed to ageing and later suspected to be rheumatoid arthritis.
Diagnosis
- Emergency Symptoms: Severe headache and vomiting leading to hospitalization.
- Diagnosis in Hospital: Initially suspected stroke, later diagnosed with a large cranial mass (meningioma).
Treatment and Waiting
- Steroids: Prescribed to alleviate symptoms.
- Waiting Period: Six weeks at home before surgery could be scheduled.
Surgery and Hospital Stay
- Surgery: Successful removal of the meningioma.
- Post-Op Recovery: Quick, with discharge two days after surgery.
Life After Surgery
- Challenges: Fatigue and adjustment to post-surgery life.
- Early Retirement: Due to the after-effects of the surgery and ongoing symptoms.
- Volunteer Work: Active involvement with the Brain Tumor Charity, Brainstrust and Radiotherapy UK.
Tumor Regrowth and Further Treatment
- Regrowth: Detected five years post-surgery.
- Treatment: Targeted stereotactic radiotherapy (gamma knife).
Volunteering and Recognition
- Activities: Volunteering with brain tumour charities.
- Awards: Recognition for contributions to charity work.
Volunteering opportunities Mentioned:
Brainstrust Peer Support Page and Andy’s profile: HERE
Personal Impact and Support
- Family Support: Essential role of Andy’s wife and children.
- Fatigue Management: Strategies for dealing with post-surgery fatigue.
- Volunteering Benefits: Therapeutic value and personal fulfillment.
Andy’s Brain Tumour Story on YOUTUBE
Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
