More Astrocytoma Stories
https://auntymbraintumours.com/category/astrocytoma-stories/
If You Have Recently Been Diagnosed With an Astrocytoma
If you have landed on this page after an astrocytoma diagnosis, whether it is your own or someone you love, please know you are not alone.
Every astrocytoma story is different.
Astrocytomas vary in type, grade and location. Some people have surgery, radiotherapy or chemotherapy. Others have regular scans to monitor their tumour. Some need support with seizures, fatigue, speech, memory or movement, while others experience fewer lasting effects.
Try not to compare your journey too closely with anyone else’s. Another person’s experience cannot predict your own.
And you do not have to walk this road alone.
Where to Go After an Astrocytoma Diagnosis?
If you have been diagnosed with an astrocytoma, there are organisations that can offer reliable information, emotional support and practical advice to you and your family.
A UK charity focused on supporting people affected by low-grade gliomas, including some astrocytomas. It shares information, connects people and funds research.
Offers information about astrocytoma types, grades and treatment, alongside support services and opportunities to connect with others.
Provides practical and emotional support to people living with brain tumours, including coaching and help understanding treatment choices.
Offers emotional and practical support for patients, families and carers, including one-to-one support and support groups.
Funds research into brain tumours and campaigns for greater awareness and investment.
NHS Neuro-Oncology and Rehabilitation Services
Your neuro-oncology team can explain what your particular diagnosis means and what follow-up care may be helpful.
Depending on your needs, physiotherapy, occupational therapy, speech and language therapy or psychological support may help with recovery and daily life.
Ask your GP, clinical nurse specialist or hospital team about appropriate referrals.
Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
