After being diagnosed with an epidermoid cyst in September 2022, Laken Stout faced an unexpected delay to brain surgery when she discovered she was pregnant. Following a seven-hour craniotomy in January 2024, the mother of two shares the emotional impact of waiting for treatment, her early recovery and the importance of family, faith and mental health support.
In September 2022, Laken Stout’s life changed when she was diagnosed with an epidermoid cyst inside her brain.
She had been experiencing chronic migraines, pain and hearing difficulties before her diagnosis. Suddenly, she was facing the frightening prospect of major brain surgery.
But just three months later, in December 2022, another life-changing discovery brought a completely different set of emotions.
Laken was pregnant.
Her planned brain surgery would have to wait until after her daughter was born.
What followed was 16 months of uncertainty, during which Laken was preparing to welcome a new baby while living with the knowledge that she would eventually need a craniotomy.
In January 2024, she finally underwent a seven-hour operation.
Although the surgery was behind her, Laken soon discovered that recovery involved much more than allowing her body to heal.
The emotional impact of diagnosis, pregnancy, waiting and surgery had left its mark.
When she shared her story with Aunty M Brain Tumours in February 2024, Laken spoke openly about the mental and physical challenges of recovery, the support of her family and church, and why patients deserve better psychological care.
This is Laken’s epidermoid cyst story.
The Symptoms Before Laken’s Epidermoid Cyst Diagnosis
Before being diagnosed, Laken had experienced chronic migraines, pain and hearing difficulties.
These symptoms were part of the health challenges she was facing when doctors discovered the epidermoid cyst.
Epidermoid cysts inside the brain are uncommon. They usually grow slowly and can sometimes exist for many years before causing noticeable symptoms.
When symptoms develop, they depend on the cyst’s location and whether it presses on nearby nerves or brain structures.
For Laken, receiving the diagnosis in September 2022 was the beginning of a frightening period of uncertainty.
There were questions about treatment, surgery and what the future might hold.
Like many people facing a neurological diagnosis, she found herself dealing with thoughts that were difficult to switch off.
What if something went wrong?
What if recovery was harder than expected?
How would everything affect her family?
And then, just as she was beginning to process the diagnosis, life took another unexpected turn.
Discovering She Was Pregnant Before Brain Surgery
In December 2022, three months after learning about her epidermoid cyst, Laken discovered she was pregnant.
It was an enormous moment in her life.
She was preparing to welcome another child while also facing a serious medical condition that would eventually require brain surgery.
Her operation was postponed until after her daughter was born.
Although the decision gave Laken time to focus on her pregnancy, it also meant living with the diagnosis for much longer than she had initially expected.
The months of waiting brought their own challenges.
Laken described how difficult it was to manage the uncertainty between discovering the cyst and finally undergoing treatment.
She had time to think about every possible outcome.
As the weeks passed, those worries began to build.
Sixteen Months of Waiting and Worrying
One of the most important parts of Laken’s experience was the emotional impact of waiting.
She was diagnosed in September 2022 and did not undergo surgery until January 2024 — a period of approximately one year and four months.
During that time, she had to manage the anxiety of knowing she needed an operation while continuing with family life.
The uncertainty took an emotional toll.
Laken explained that much of her recovery involved processing the fears she had carried throughout those months.
Even after surgery, the worry did not simply disappear.
She was left trying to work through the thoughts, stress and emotional strain that had accumulated before treatment.
For Laken, the waiting period became just as significant a part of her story as the operation itself.
Laken’s Seven-Hour Craniotomy in January 2024
In January 2024, Laken finally underwent brain surgery.
Her craniotomy lasted approximately seven hours.
A craniotomy is an operation in which a neurosurgeon temporarily removes a section of skull to access the brain and perform the necessary procedure.
For an intracranial epidermoid cyst, surgery can be particularly delicate because these cysts sometimes develop around important nerves and blood vessels.
The surgical approach depends on the cyst’s location and the structures surrounding it.
Laken did not provide detailed information about exactly where her cyst was positioned or how much was removed, but she shared the significance of finally reaching the operation after such a long wait.
The surgery marked an important turning point.
The experience she had been worrying about for more than a year had finally taken place.
But that did not mean everything immediately returned to normal.
Recovery After Epidermoid Cyst Brain Surgery
When Laken shared her story in February 2024, she was still in the early stages of recovering from her operation.
Her body had undergone major surgery, and she was learning to manage the physical and emotional effects.
She was grateful to be recovering, but she understood that healing would take time.
“I am still healing, but so far so good!”
It was a simple description of a recovery process that was still unfolding.
Laken was trying to make the best of each day while allowing herself time to heal.
She also recognised that the emotional impact of everything she had experienced required attention.
The operation was finished, but the fears and uncertainty she had lived with for 16 months were still being processed.
The Emotional Impact of Brain Surgery and Recovery
When I asked Laken what she believed was the toughest challenge facing brain tumour survivors, her answer focused on mental and physical trauma.
She explained that many people understandably concentrate on the physical effects of a diagnosis and surgery.
There are symptoms to manage, treatment decisions to make and the practical challenges of recovery.
But she felt that the emotional impact could be equally difficult.
Before surgery, there was the uncertainty of waiting.
After surgery, there were the memories, fears and anxieties that had built up throughout the experience.
For Laken, recovering meant learning how to process both.
She believed that patients should receive more emotional support before treatment, during recovery and while awaiting follow-up scan results.
Too often, she felt, people were expected to manage the anxiety and depression associated with serious neurological conditions without sufficient guidance.
Her experience left her feeling strongly that psychological care should be treated as an important part of recovery, rather than something secondary to physical treatment.
Why Mental Health Support Matters After Brain Surgery
Laken was particularly concerned about people who appear physically well but are still struggling emotionally.
Someone may have come through surgery successfully, yet continue to worry about future scans, possible complications or the uncertainty of what comes next.
These feelings can be difficult to explain to people who have never experienced a serious diagnosis.
She believed more education and support were needed to help patients and families understand the emotional challenges involved.
For Laken, finding people who understood became an important part of her recovery.
Finding Support Through the Brain Tumour Community
One of the things Laken appreciated most was connecting with other people affected by brain tumours and cysts.
Online support groups gave her opportunities to speak with others who understood the fears and challenges she was experiencing.
She affectionately referred to these connections as her “brain buddies”.
These communities offered understanding from people who had faced their own diagnoses, operations and recoveries.
Laken believed that sharing experiences could reduce the isolation many patients feel.
There was comfort in knowing she could speak openly without needing to explain every detail of what she had been through.
She also recognised the importance of asking questions and understanding a diagnosis.
Her advice was to research the condition using reliable information, find supportive communities and keep asking the medical team questions until the proposed treatment plan felt clear.
The Importance of Family and Faith in Laken’s Recovery
When I asked Laken what motivated her, she spoke about the people who meant the most to her.
Her two children, husband and wider family were central to her life.
But her faith was equally important.
Throughout her diagnosis, pregnancy, waiting period and surgery, Laken drew strength from her religious beliefs.
She credited prayer with helping her through frightening moments.
For Laken, faith was a source of comfort and hope when she felt overwhelmed by uncertainty.
It was also something she wanted to share with others who held similar beliefs.
The Father and Grandmother Who Raised Her
When I asked Laken who her heroes were, she spoke warmly about her father and grandmother, alongside her faith in God and Jesus Christ.
Laken had been raised by a single father after her mother left when she was young.
Her father worked hard to provide for her, while her paternal grandmother stepped in as a mother figure.
Their love, guidance and devotion helped shape the person she became.
Laken credited them with teaching her values that remained important throughout her life.
Having experienced difficult circumstances during childhood, she deeply appreciated the family support surrounding her as an adult.
Their example also influenced how she approached the challenges of her own diagnosis and recovery.
How Brain Surgery Changed Laken’s Outlook on Life
When I asked Laken how her experience had changed her, the first thing she mentioned was empathy.
She felt that everything she had been through had helped her understand other people’s struggles in a way she had not fully appreciated before.
Having faced uncertainty, fear and a difficult recovery, she felt more connected to people experiencing serious illness or challenging circumstances.
It had changed the way she related to others.
She recognised that people may be dealing with worries and difficulties that are not immediately visible.
Her own experience had given her a deeper appreciation of the importance of kindness, patience and understanding.
Getting to Know Laken Beyond Her Diagnosis
One of the things I particularly enjoy about interviewing people is discovering who they are beyond their medical experiences.
When I asked Laken to share something people might not know about her, she spoke enthusiastically about her home in the Appalachian Mountains.
She loved the landscape, culture and history of the region.
Laken was particularly interested in learning about traditional Appalachian life — from food, clothing and music to old customs, folklore and spirituality.
She enjoyed listening to stories from older generations and reading about how communities had persevered through difficult circumstances.
She was even fascinated by the Farmer’s Almanac, traditional sayings and the mysterious creatures found in Appalachian folklore.
It was a lovely glimpse into Laken’s personality.
She is not simply someone who has undergone brain surgery.
She is a mother, wife, daughter, granddaughter and someone who loves learning about the history and traditions of the place she calls home.
What Can You Give Someone Recovering From Brain Surgery?
One of the most practical parts of Laken’s interview came when I asked what gift she would give somebody facing a brain tumour diagnosis.
Her answer was not what many people might expect.
She believed the greatest gift loved ones could offer was to educate themselves about the person’s condition.
Understanding the diagnosis, treatment and possible recovery challenges could help family and friends provide more meaningful support.
It also meant that the patient did not always have to explain complicated medical information while dealing with their own emotions.
For Laken, listening, learning and being available were valuable ways to show someone they were not alone.
The Gifts That Helped Laken During Recovery
Laken also remembered several thoughtful gestures she received following surgery.
Her church community sent cards filled with messages of love, encouragement and prayer.
Members of the church organised a meal train so that she and her family would not have to worry about preparing dinners during the first weeks of recovery.
She was also grateful for self-care gifts that brought her a little comfort.
These practical acts of kindness made a difficult period easier.
They also helped her feel supported when she was physically uncomfortable and adjusting to the changes that follow major brain surgery.
Laken spoke openly about how difficult it can be to see your appearance change after an operation.
Hair may have been shaved, there may be a healing wound or scar, and people can feel vulnerable in ways they did not expect.
Small comforts and thoughtful gestures can mean a great deal during that time.
For Laken, the important thing was knowing that people cared.
Laken’s Advice to Anyone Facing an Epidermoid Cyst Diagnosis
Drawing on her own experience, Laken encouraged people to become informed, ask questions and accept support.
She believed it was important to understand the diagnosis as fully as possible rather than feeling unable to question the medical information being given.
She also valued finding online communities where people shared first-hand experiences of treatment and recovery.
Her personal faith played a major role in helping her cope, and she encouraged others who shared her beliefs to draw on prayer for support.
But one of her strongest messages was about emotional wellbeing.
Laken wanted people to know that fear, anxiety and the need for psychological support should not be dismissed.
Waiting for surgery, recovering from an operation or preparing for another scan can be emotionally exhausting.
Patients should not have to feel that they must manage everything alone.
Family support, specialist healthcare professionals, counselling services and patient communities can all have important roles to play.
My Thoughts: The Emotional Recovery We Don’t Always See
What stands out to me about Laken’s story is not only that she underwent a seven-hour craniotomy, but that she spent 16 months knowing she needed brain surgery while also preparing to welcome a baby.
That is an enormous amount of uncertainty to carry.
I think we sometimes focus so much on the operation itself that we forget everything a person may have experienced before reaching the operating theatre.
For Laken, the waiting was a major part of her journey.
And after surgery, those worries did not simply disappear.
I particularly appreciated her openness about mental health.
People can look as though they are recovering well on the outside while still trying to process everything that has happened emotionally.
That deserves recognition.
I also loved hearing about the support Laken received from her church, family and online community.
Something as simple as a meal being delivered, a thoughtful card or somebody taking the time to understand the diagnosis can make a real difference.
And learning about her love of Appalachian history and folklore reminded me of something I always want to show through Aunty M Brain Tumours.
There is so much more to every person than their diagnosis.
Thank you, Laken, for sharing your experience with me and the Aunty M Brain Tumours community.
I hope your story helps somebody else facing an epidermoid cyst diagnosis, waiting for surgery or navigating the emotional challenges of recovery feel a little less alone.
What Is an Intracranial Epidermoid Cyst?
An intracranial epidermoid cyst is a rare, usually benign (non-cancerous), slow-growing lesion that develops inside the skull.
These cysts form from cells that become trapped during early development before birth.
They contain material produced by skin-like cells, including keratin, a protein found naturally in skin, hair and nails.
Intracranial epidermoid cysts are different from the common epidermoid cysts that develop beneath the skin.
Although they are generally benign, their location inside the skull can make them medically significant.
As they grow, they may press against nearby nerves, blood vessels or brain structures.
The symptoms and treatment options depend on the cyst’s location, size and effect on surrounding tissue.
What Symptoms Can an Epidermoid Cyst in the Brain Cause?
Some people may have few or no symptoms, particularly when the cyst is small.
When symptoms develop, they depend on the area of the brain affected.
Possible symptoms include:
- Headaches
- Hearing changes
- Facial numbness or pain
- Dizziness or balance difficulties
- Visual disturbances
- Other neurological symptoms caused by pressure on nearby structures
Laken reported chronic migraines, pain and hearing difficulties before her diagnosis.
However, these symptoms can have many causes. A specialist must assess whether a particular cyst is responsible for them.
Intracranial Epidermoid Cyst Frequently Asked Questions
Is an Epidermoid Cyst a Brain Tumour?
An intracranial epidermoid cyst is usually described as a benign cystic lesion or tumour-like growth.
It is not a typical cancerous brain tumour.
However, because it develops inside the skull and can affect important neurological structures, it may require specialist neurosurgical care.
How Is an Intracranial Epidermoid Cyst Diagnosed?
MRI scans are commonly used to identify intracranial epidermoid cysts and assess their size and location.
Special MRI sequences can help specialists distinguish epidermoid cysts from other fluid-filled lesions.
The neurosurgical team uses the scan findings alongside symptoms and medical history to decide whether treatment is needed.
Does an Epidermoid Cyst Always Need Brain Surgery?
Not necessarily.
Treatment depends on factors such as the cyst’s size, location, symptoms and whether it is affecting surrounding structures.
Surgery may be recommended when a cyst is causing significant neurological symptoms or other complications.
The benefits and risks must be considered individually.
Can an Epidermoid Cyst Grow Back After Surgery?
Yes.
An epidermoid cyst can recur, particularly if some of its capsule remains after surgery.
Sometimes removing the entire cyst would risk damaging nearby nerves or blood vessels, so a neurosurgeon may recommend leaving a small part behind.
Follow-up MRI scans may be needed to monitor for changes.
How Long Does Recovery Take After Epidermoid Cyst Surgery?
There is no single recovery timeline.
Recovery depends on the operation, the cyst’s location, the person’s health and any complications or neurological symptoms.
Some people recover relatively quickly, while others experience fatigue, neurological difficulties or longer-term emotional challenges.
Laken’s story reflects her experience during early recovery in February 2024.
Epidermoid Cyst Information and Support
If you or somebody you love has been diagnosed with an intracranial epidermoid cyst, reliable medical information can help you understand the condition and prepare questions for your healthcare team.
Johns Hopkins Medicine — Brain Tumour Types
Johns Hopkins provides information about benign brain lesions, including dermoid and epidermoid cysts, and their surgical treatment.
Read the Johns Hopkins Brain Tumour Guide
NIH Genetic and Rare Diseases Information Center
Information about rare dermoid and epidermoid cysts of the central nervous system, symptoms and available resources.
Read the NIH Rare Disease Information
Brainstrust — Brain Tumour Support
Brainstrust offers emotional support, information and practical guidance for people affected by brain tumours and related conditions.
Read More Brain Cyst and Brain Surgery Stories
Every brain cyst diagnosis is different.
Some people need monitoring, while others require surgery. Recovery can vary considerably depending on the condition and the individual.
If Laken’s story has resonated with you, you may also find it helpful to read other personal experiences here at Aunty M Brain Tumours.
Mónica Solis shares her experience of two brain operations, complications, rehabilitation and the emotional challenges of recovery.
Claire Snyman’s Colloid Cyst Story
Claire shares her journey from diagnosis and monitoring to brain surgery, recovery and patient advocacy.
These are different medical conditions, but the personal experiences may help readers understand some of the challenges surrounding neurosurgery.
Would you like to share your own story?
If you have been affected by a brain tumour or brain cyst and would like to help others through your experience, I would love to hear from you.
Medical disclaimer: Laken’s story reflects her personal experience as shared in February 2024. The general medical information is for awareness and support and should not replace advice from a qualified healthcare professional. Always discuss your diagnosis, treatment and recovery with your specialist medical team.
Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
