Dysembryoplastic Neuroepithelial Tumour (DNT) Stories

Real stories from people affected by Dysembryoplastic Neuroepithelial Tumour, also known as DNT.

Here you can read and listen to personal experiences of symptoms, seizures, diagnosis, brain surgery, treatment, recovery and life after a DNT diagnosis.

Dysembryoplastic Neuroepithelial Tumours are rare, usually slow-growing brain tumours that are most often diagnosed in children and young adults. They are commonly associated with seizures, and surgery may be recommended when the tumour is causing difficult-to-control epilepsy.

Every person’s experience is different. These stories are shared to help others understand what living with a rare DNT brain tumour can involve and to help those newly diagnosed feel less alone.

Browse the stories below and hear directly from people affected by DNT.

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