Read More Astrocytoma Stories
Read more personal Astrocytoma stories on Aunty M Brain Tumours
If You Have Recently Been Diagnosed With an Astrocytoma
If you have landed on this page after an astrocytoma diagnosis, whether it is your own or someone you love, please know you are not alone.
Every astrocytoma story is different.
Astrocytoma’s can vary in grade, location and how they affect a person’s life. Some are slower-growing, while others are more aggressive.
Some people have surgery, radiotherapy or chemotherapy. Others may have regular scans to monitor their tumour. Some experience long-term effects, while others face different challenges during treatment and recovery.
Try not to compare your journey too closely with anyone else’s.
Reading other people’s experiences can offer comfort, understanding and reassurance. However, another person’s diagnosis or outcome does not determine what will happen to you.
Take things at your own pace, ask questions and remember that you do not have to face this journey alone.
Where to Go After an Astrocytoma Diagnosis?
If you or someone you care about has been diagnosed with an astrocytoma, there are organisations offering information, emotional support, practical advice and opportunities to connect with others.
Astro Brain Tumour Fund
A UK charity dedicated to supporting people affected by low-grade gliomas, including Grade 1 and Grade 2 astrocytoma’s.
The charity provides information, opportunities to connect with others and funding for research into low-grade brain tumours.
The Brain Tumour Charity
Provides information about different types and grades of astrocytoma, possible treatments and living with a brain tumour.
It also offers emotional support, support groups and resources for patients, families and carers.
Visit The Brain Tumour Charity
Read its information about astrocytomas
Brainstrust
Offers practical and emotional support to people living with brain tumours, including those affected by low-grade and high-grade gliomas.
Its services include individual support, coaching, information and opportunities to connect with others who understand life with a brain tumour.
Brain Tumour Support
A UK charity providing support for anyone affected by a brain tumour, including patients, families, carers and loved ones.
It offers individual and group support, opportunities to connect with others and specialist emotional support.
Brain Tumour Research
Funds research into brain tumours and campaigns for greater awareness and investment in research.
Its work aims to improve understanding, develop better treatments and ultimately find cures for all types of brain tumours.
NHS Neuro-Oncology and Rehabilitation Services
Your specialist medical team can help you understand your particular astrocytoma diagnosis, treatment options and follow-up care.
Depending on your needs, additional support may include physiotherapy, occupational therapy, speech and language therapy, psychological support or help managing seizures and fatigue.
Ask your GP, specialist nurse or neuro-oncology team about appropriate referrals.
Would You Like to Share Your Astrocytoma Story?
At Aunty M Brain Tumours, we believe every person’s experience deserves to be heard.
Whether you have recently been diagnosed, are undergoing treatment, living with long-term effects or supporting someone you love, your experience could help another person feel less alone.
Find out how to share your brain tumour story
Claire Bullimore is an influential figure in the brain tumour community. She embarked on her brain tumour journey and was diagnosed with an intraventricular meningioma. In response to her experiences, Claire founded ‘Aunty M Brain Tumours,’ a platform dedicated to sharing brain tumour stories. Based in London, England, Claire also identifies as a blogger and speaker for Aunty M Brain Tumours, shedding light on the challenges faced by those diagnosed and amplifying their voices for better awareness and support. Through her dedication and advocacy, Claire’s efforts have been recognized by Brain Tumour Research and other organizations, spotlighting her commitment to making a positive difference for individuals impacted by brain tumours.
