Rosette-Forming Glioneuronal Tumour (RGNT) Stories

Real stories from people affected by Rosette-Forming Glioneuronal Tumour, also known as RGNT.

Here you can read and listen to personal experiences of symptoms, diagnosis, brain surgery, treatment, recovery, monitoring and life after an RGNT diagnosis.

RGNT is a rare, usually slow-growing brain tumour made up of both glial and neuronal cells. It most often develops in or near the fourth ventricle or cerebellum, although it can occur elsewhere in the brain.

Because RGNT is uncommon, diagnosis can sometimes be unexpected and treatment will depend on the tumour’s location, symptoms and individual circumstances. Some people may have surgery, while others may be monitored with regular scans.

Browse the stories below and hear directly from people affected by RGNT.

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