Real stories from people and families affected by Neurofibromatosis Type 2, now also known as NF2-related schwannomatosis.
Here you can read and listen to personal experiences of diagnosis, hearing loss, multiple tumours, surgery, treatment, monitoring and everyday life with NF2.
NF2 is a rare genetic condition that can cause tumours to develop on nerves and within the brain and spinal cord. These may include vestibular schwannomas, meningiomas and ependymomas. The condition can affect hearing, balance, vision and other neurological functions, although every person’s experience is different.
These stories are shared to help people better understand the realities of living with NF2 and to support individuals and families affected by this rare condition.
Browse the stories below and hear directly from people and families affected by NF2.
