Comments for Aunty M Brain Tumours Podcast

Comment on Sara’s Acoustic Neuroma (vestibular schwannoma) Story by Heidi

Heidi — Sun, 27 Apr 2025 14:33:21 +0000

Thank you for sharing your journey Sara. I have been recently diagnosed with an Acoustic Neuroma. My symptoms are very similar to yours. Joint pain, dizziness/ wobbly, headaches, etc. I’m in the early stages of what will happen next and am scared of what will become. My neuroma went from 9 mm to 13.7 mm in a month. I’d love to reach out to Sara and anyone who is currently going through this or has recovered.

Blessings,
Heidi

Comment on Podcast: Grace’s Pilocytic Astrocytoma Story by Kathryn Mongan-Rallis

Kathryn Mongan-Rallis — Sat, 19 Apr 2025 14:08:20 +0000

I have an Pilocystic Astrocytoma in my cerebellum. Had surgery in July 2024 Now going through proton radiation at the Mayo Clinic in Rochester, Minnesota. I appreciate hearing your story.

Comment on I was diagnosed with an Arachnoid Cysts by Branel

Branel — Mon, 11 Nov 2024 06:33:48 +0000

Hi, i was recently diagnose with Arachnoid cyst as well. After finding out about arachnoid cyst, i remember i used to have imbalance and fatique and tiredness. Right now after diagnosing, i realize i am more forgetful then usual. Slight anxiousness. May i know how do you cope by after your diagnosis of an arachnoid cyst

Comment on Regina Was Diagnosed With A 9cm Meningioma by Claire Bullimore

Claire Bullimore — Mon, 28 Oct 2024 21:55:15 +0000

In reply to Dulce M.

Hi Morin, I am so glad they were able to remove the tumour. It is completely. It is understandable that you have anxiety. Hopefully speaking with somebody will help with that is some way, help built your confidence back up. Have you been able to get the right dosage and tablets for the seizures? Claire.

Comment on Regina Was Diagnosed With A 9cm Meningioma by Dulce M

Dulce M — Wed, 16 Oct 2024 06:31:14 +0000

Hi, I can relate to this myself. Lived my entire life with the tumor, more or less since I was 11 and im 40. Horrible headaches my entire life, major anxiety and my hands were always shaking and I was always told it was a migraine or stress related. My life was changing or may I say the headaches were killing me. On April 14, 2024 decided to go into ER for the chronic headaches and that's when the news was given to me. I was already out of it. Had my sister on speaker and she heard everything and ran to my room and she saw I was not well. Had my craniotomy surgery on April 18. 2024 and the meningioma was removed size of a baseball . Was in hospital for 3 weeks after surgery. After surgery ive had memory loss, seizures (certain things triggered them) and anxiety I still have it and also major panic attacks, I started seeing a psychologist, psychiatrist and soon a neurologist for continous of my chronic headaches . Positive side my hands stopped shaking. And I'm Alive. I can see. Hear and talk. I'm blessed for God giving me another chance to live and my Neurosurgeon for doing an amazing surgery . I'm beyond happy your here as well. No one will understand until they live it.

Comment on Podcast: Rudy’s Diffuse Astrocytoma Story by Dare

Dare — Tue, 30 Jul 2024 21:30:35 +0000

World class stand up tuff man grateful your still with us

Comment on 26 Things I Learned From My Brain Tumour and Brain Surgery by Laurie Jean Krause

Laurie Jean Krause — Fri, 27 Oct 2023 11:40:17 +0000

Hello
I found your article to be helpful
Especially about procedure and what some of the steps are with sergury and family & friends.
Some people ,friends will step away…I can understand they also deal with their own problems and can’t always take on more responsibilities.
I was just presented with a brain tumor called suspitien Glioma effecting the area precentral motor control ( right side)
We don’t know if it is benign or Melignat
Surgery is necessary for this.
Complete removal is required so regrown is and additional surgery will not be necessary.
The surgeon team is currently discussing my case & will return today for my decision to carry on with the surgery.

If there are more groups that I can reach out to could you please send my way.
God bless & continue to heal..praying for you
Laurie

Comment on Brain Tumour Recovery Journal by Özken Trafo

Özken Trafo — Fri, 28 Apr 2023 23:33:32 +0000

Gözyaşları, kederin sessiz dilidir. (Voltaire)

Comment on 5 Ways To Deal With Personality Changes Caused By A Brain Tumour by Claire Bullimore

Claire Bullimore — Tue, 05 Oct 2021 20:41:15 +0000

In reply to Latisha M Loatman.

I’m so sorry you have both had to go through this 🙁

Comment on 5 Ways To Deal With Personality Changes Caused By A Brain Tumour by Latisha M Loatman

Latisha M Loatman — Sun, 22 Aug 2021 22:13:10 +0000

My fiancé has a brain tumor. I was never told about personality changes. Its very difficult. I dont know from one moment to the next how he feels or which way our day will go.

Comment on Mother of 4 was Diagnosed with a Hemangioblastoma by Claire Bullimore

Claire Bullimore — Thu, 29 Apr 2021 19:09:14 +0000

In reply to Joe.

Hi Joe, thank you for sharing. You can find out more about Jo on her FB Page https://www.facebook.com/benignbraintumour

Comment on Mother of 4 was Diagnosed with a Hemangioblastoma by Joe

Joe — Tue, 27 Apr 2021 19:09:34 +0000

Refreshing to read your story
I also had the same but had to have
A shunt since it was found late
I also had a brain bleed
I cannot walk and have swallow problems
But I am all there !!!
I am in uk

Comment on I Had A Bone Meningioma also known as a Intraosseous Meningioma by Claire Bullimore

Claire Bullimore — Thu, 25 Feb 2021 13:03:08 +0000

In reply to Tracey Knibbs.

We all need a friend like you 🙂

Comment on I Had A Bone Meningioma also known as a Intraosseous Meningioma by Tracey Knibbs

Tracey Knibbs — Thu, 25 Feb 2021 08:02:36 +0000

Rachel is my best friend from school shes not just a friend she's my sister too she is a fighter she hasn't had it easy I would like to say I'm always there for my girl when she feeling low I'm a shoulder to cry on I have good ears for listening and giving advice I'm soo proud of you rachel ????????

Comment on My Brain Tumour Brought Me And My Mum Closer by Jennifer

Jennifer — Fri, 05 Feb 2021 13:42:54 +0000

Just an amazing story of hope, courage and strength. ????????????

Comment on I Was Diagnosed With A Hemangioblastoma by Anannya

Anannya — Mon, 30 Nov 2020 15:44:19 +0000

I am a doctor, sad about your disease , but inspite being a developing country we would have diagnosed this condition long back, most people with some amount of money atleast living in bigger cities of India can get immediate access to specialist and can get scans done in hours.
Really strange he couldn’t diagnose it earlier.

Comment on Diagnosed with a Colloid Cysts During Covid-19 Lockdown by Toni

Toni — Wed, 30 Sep 2020 22:15:19 +0000

Great to read that you are getting stronger and are still so positive

Comment on Jennifer Will Not Let Her Cancer Break Her Faith by pre workout

pre workout — Sun, 28 Jun 2020 19:05:28 +0000

Hey! I could have sworn I’ve been to this blog before but after reading through
some of the post I realized it’s new to me. Anyhow, I’m definitely glad I found it and I’ll be book-marking and checking back often!

Comment on 21 Best Christmas After Surgery Gifts by molly miller

molly miller — Mon, 18 May 2020 14:49:30 +0000

wonderful ideas.

Comment on God Is Getting Me Through My 2nd Oligodendroglioma Diagnosis by Simon Barradas

Simon Barradas — Sun, 10 May 2020 16:12:55 +0000

That is one strong woman!!! Wishes for a complete recovery. What a testimony, my friend, and an amazing Blessing from God… Celebrating with you god’s goodness of health. May we all be so blessed. Stay safe and healthy. Hallelujah