Claire Bullimore Brain Tumour Story

My Brain Tumour Left Me In A Mess

My Brain Tumour Left Me In A Mess

My Brain Tumour Left Me In A Mess. I know we all have trials, some more than others. But God loves me, and He is always there for me.

Carol Vaughan is one of the strongest people I know!

In July 2016 I had the pleasure of interviewing Carol on my radio show. She talked about her experience with her brain tumour diagnosis and all the operations she has had to overcome.

On the 28th July 2008, Carol went to a courthouse for jury duty and was excused early. When she was going back to her car, she fell on the ramp. Because she fell, someone coming to her aid called the ambulance. In the ER after a CT scan, they found a brain tumour. Listen here to hear Carol's original interview.

Now 2 years on Carol Shares where she is now with her recovery.

Hi Carol, How are you feeling now 10 years on from your diagnosis. Are you struggling with anything since your diagnoses and recovery?

Not too good. Barely getting around. I have scoliosis and went in for a “routine” injection in March 2017 and got numbness, nerve pain and “drop foot”. Still dealing with it.

Have to use a cane and walker.

We all have trials, some more than others

I have been struggling with depression. You can't even imagine having to look at yourself every day in the mirror with a deformed head

I still have no bone flap and can't have any more surgeries. Nothing I can do about it.

Every time I had an operation I got an infection. (12 or more-surgeries, I have lost count)

I now have Frontal Lobe Syndrome. I will have to deal with this the rest of my life.

What has motivated you while you go through your trials this year?

My daughters are both getting married this spring. One in February, and the other in May.

What do you do in your life To Distract Yourself?

I just do the routine things…grocery store, pharmacy, doctor visit, read books, use Facebook.

What is the toughest challenge survivors face?

Dealing with the changes a brain tumour brings. Even if you have a brain tumour removed…anytime you have surgery on your brain you have Traumatic Brain Injury.

Any advice for people or loved ones that get daunting diagnoses?

Try to stay calm. Try not to get upset. I have my faith in God, and it gives me comfort, If I didn't have my faith in God, it would be tough.

Who are your personal heroes?

Any person that is dealing with trials and troubles and maintains an uplifting attitude.

What would you say is the most exciting thing you've done since your diagnosis?

Probably the 2 trips we took in 2015 and 2017. Met another meningioma survivor, Claudia Helecky and visited Reno and Old Sacramento. In 2017 we took two tours to Civil War Battlefield sites in Gettysburg and Antietam and other near there.

Tell us something about yourself that people probably didn’t know… anything?

I have survived death at least 2 times. I wasn't expected to live after my craniotomy in 2008. In 2015 I totalled our car on the freeway. Didn't hit anyone else-could has died very easily!

God protected me.

It is in Your strength, not mine – 1 Chronicle 16:11God loves me, and He is always there for me

You can listen to Carols Original Interview Here:

My Meningioma Changed My Life

Conclusion

I am so grateful to Carol for her bravery and being so open and honest with us about her struggles. Something I have learned over the past 10 years, that although some people are very lucky to not had any long-term problems from treatment or surgery. There are others who are on a continuous battle in living a somewhat normal life.

Do you have ongoing struggles?

Other Personal Stories To Read:

My Brain Tumour Left Me Incredibly Positive

I Have A Diffuse Astrocytoma On My Brain Stem

Victoria And Her Meningioma Story

I Was Diagnosed With A Central Neurocytoma

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My Brain Tumour Left Me Incredibly Positive

LAPTOP PHILHARMONIC MY BRAIN TUMOUR LEFT ME INCREDIBLY POSITIVE

My Brain Tumour Left Me Incredibly Positive – Laptop Philharmonic

In July 2016 I had the pleasure of interviewing ‘musician’ Sam, aka Laptop Philharmonic.

You can listen to his original interview about being diagnosed with a brain tumour here.

He shared his personal story about when he was diagnosed with a brain tumour and how he wrote music to channel his feelings about the experience.

Sam had been having seizures on and off for over 4 years. It was in 2013 after feeling unhappy that the doctors were not taking his case seriously that he and his wife insisted on having more investigation.  Eventually, his GP set him up for an MRI.

He finally met a neurologist to discuss his results, and he was given the news that they had found a brain tumour. They wanted to operate quickly.

It was through this experience that he wrote the album Laptop Philharmonic. He tells the story of when he was diagnosed with a brain tumour and his recovery. In addition, he put Laptop Philharmonic together because he wanted to share the insights he had with the world. Sam finished our interview with these words.

“It ended up being an incredibly positive experience, and I hope to pass some of that on to people.”

Now two years on Sam has a new single out in January 2019, and we catch up on how he is getting on!

Hi Sam! How are you feeling now 5 years on from your diagnosis?

Fine, thank you! Quite tired, but I think that has a lot more to do with having a 5-year-old daughter to attend to than it does with my diagnosis.

How is everything going with the first album Laptop Philharmonic?

It's up on Spotify now and on most other major music store/streaming things. I've had plenty of positive feedback, certainly enough that I think it was “worth it” so to speak.

What is your new album My Other Face all about?

Ah, now that would be telling. With Craniotomy, it was obvious what it was all about, and I had a clear story to tell. But it did occur to me that one thing I've always liked in work from other artists is trying to unpick the meaning of whatever they've produced.

I think if I leave people to ponder on the meaning of my new album, they might understand it on a deeper level if they work it out themselves than if I just told them. Kid A had that effect on me – once I'd started to understand what it was all about, its message hit home much harder because I'd had to work to understand it.

Other Personal Stories To Read:

Living With A Meningioma: I Won't Let My New Diagnosis Define Me

I Was Diagnosed With A Central Neurocytoma

Why Do I Blog About Brain Tumours And Breast Cancer?

Are you struggling with anything since your diagnoses and recovery?

Not really with anything relating to my diagnosis or recovery other than feeling a bit on edge when it's time to see my consultant for a check-up. There are plenty of other struggles to keep me occupied though.

What do you do now in your life other than music?

I work as a web developer, I run around after my 5-year-old daughter, I code in my spare time, and I like to draw. Occasionally I have a sit-down.

What motivates you?

My faith. I'm a Christian, and that underpins everything for me. It means I want to be a loving, gentle, kind… it means I aim to be a good person all around, although I often fall short of it.

Who is your personal hero or are your heroes?

Is it a cop-out if I say I think that there are lots of people who are heroic at times out there? All the ones who just quietly get on with trying to do good things. The ones we probably don't even notice because they're too busy just getting on with it.

What would you say is the most exciting thing you’ve ever done since your diagnosis?

Releasing my music into the wild! I'd been producing music for years, but never had anything I was happy enough with to share around. After the operation, I gained a new determination and focus that hasn't gone away since.

What is the toughest challenge survivors face?

Maybe it knows how much of a burden you are to everyone who cares about you. You can't really do anything about it – your body has to recover at its own rate, and no one can reasonably make major demands of you while you're still in recovery.

My wife was about 5 weeks of giving birth to our daughter when I came out of surgery. Also, it was a very hot summer in 2013. It was really hard for her.

On a practical level, not being able to drive doesn't make life any easier…

For people or loved ones that get daunting diagnoses, do you have any advice?

That's a tough one – I guess things can be very different depending on what the diagnosis is, and what suggested treatment you have. I can tell you that my Christian faith was super important – a real source of comfort and strength, and who knows what kind of state I'd have been in without it.

A practical tip might be to take something warm to the hospital with you… I remember being rather cold at night when I first went in.

Tell us something about yourself that people probably didn’t know… anything?

I have the world's highest score in the little-known video game Ostrich Island. Well, last time I checked anyway.

Find out more:

Website: Laptop Philharmonic

Twitter: Here

Facebook Page: Here

You can listen to Laptop Philharmonic Original Interview Here:

 

My Brain Tumour Left Me Incredibly Positive - Laptop Philharmonic

 

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Claire Bullimore brain tumour Story
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