Claire Bullimore Brain Tumour Story

I Am Fighting An Anaplastic Astrocytoma Stage 3

Bambi and me blog

Sarah Hughes was diagnosed with an Anaplastic Astrocytoma in February 2019. Be inspired by her infectious humour and keeping fabulous while going through treatment.

Sarah, when were you diagnosed?

It all started in January 9th 2019. I was walking along Belgravia with a girlfriend when I had a weird experience of prolonged déjà vu.  I put it down to hormones. However two weeks later when I was in the USA it started happening again on a daily basis.  After a week I decided to go to the emergency room.  At this point, I still thought it was just hormonal, or that maybe I was becoming a psychic and needed to acquire a headscarf and crystal ball!

I went to the emergency room on the 14th of February and was admitted to the hospital. After numerous tests, they did an MRI and discovered a brain tumour. I was more annoyed than anything as I had a flight booked that night and needed to cancel it.

“Cupid messed up that day February 14th, his arrow missed my heart and hit my brain!  Idiot.” – Sarah Hughes

Three weeks after diagnosis I had surgery to remove the tumour from my front temporal lobe. After one month of recovery, I had six weeks of proton radiation and one week of photon radiation. I’m currently having a rest, regrouping and checking daily to see if my hair is growing back!

I am still in treatment and about to start 12 months of chemotherapy. However, I aim to continue to enjoy life to its fullest in between the sicky bits.

“I am still in treatment and about to start 12 months of chemotherapy. However, I aim to continue to enjoy life to its fullest in between the sicky bits”.

 

Sarah Hughes Brain Cancer

Why is your blog called Bambi & Me?

She was the acrobatic villain in Diamonds are Forever who strangled people with her beautiful long legs.

She ultimately came to a sticky end though.

What do you do now to keep busy?

I started the blog in Feb for numerous reasons:

The neurosurgeon told me I might lose some memory during surgery so I just started writing things down ..  friends names, family names, bank account details, dog’s name, where I live .. et cetera. But it almost wasn’t enough… I wanted to be able to remember ‘moments’ as well.

Friends were emailing and texting often and asking me how things were going and I was copying and pasting messages because the whole situation had become so overwhelming.  It felt like I was forgetting the sequence and timing of everything that was happening around me.

And then one morning I woke up and thought…  I know I’ll start a diary style blog so all of my friends and family can read it, I don’t have to keep copying and pasting texts and also I get to remember things I’ve done by keeping the diary.

“After I started the blog I realised I was finding it very therapeutic and cathartic to get my thoughts down on paper and to spew out my frustrations and potty-mouthed profanities!”

What motivates you?

Life and love motivate me!

Who is your personal hero or are your heroes?

I have many heroes. My husband, my son, my baby sister and my many gorgeous loving friends. I’m very fortunate to have incredible support.

What would you say is the most interesting thing you’ve ever done?

The list is endless! And it depends on how down and dirty you want me to get.  I’ve travelled to many interesting places. I’ve watched a cheetah chase and kill an impala in Africa, I’ve travelled over California in a hot air balloon, I’ve flown the Florida keys in a 1940s biplane, I’ve ridden on horseback across Spain, I’ve scuba dived in many exotic and scary locations, I’ve lived on a paradise island and I’ve lived in the big metropolis. I’ve worked for a charity and I’ve worked for a large corporation. I’ve volunteered in South America and I’ve volunteered closer to home. I’ve donated my bone marrow to a stranger. I’ll stop now!

What is the toughest challenge a survivor's face?

Life, in general, it’s a challenge. You just have to face it head on and get on with it. What is the alternative?!

What is next on your agenda?

Lots of trips in between chemo treatments.  Bermuda first!

Any advice for people or loved ones that get daunting diagnoses?

Life is a rollercoaster. You just have to hold on tight and get on with it. Surround yourself with love and remove any negativity. Love is the drug and the answer to everything.

Tell us something about yourself that people probably didn’t know… anything?

I still sleep with my childhood panda bear under my pillow.


Conclusion:

What an amazing attitude Sarah has to life. I met Sarah earlier this year when she joined the ‘Brain Tumour Bloggers United’ Facebook Group.

Makes sure you check out her blog Bambi and Me and be inspired. Also, find her on Instagram and Facebook Page.

Related Posts:

Mother of 4 was Diagnosed with a Hemangioblastoma(Opens in a new browser tab)

I Have A Diffuse Astrocytoma On My Brain Stem(Opens in a new browser tab)

Surviving a Oligodendroglioma(Opens in a new browser tab)

11 Things You Need To Do If You Have Survived A Brain Tumour(Opens in a new browser tab)

 

Bambi & Me

 

Helpful gifts for a person affected by cancer or benign brain tumour

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Beating An Pilocytic Astrocytoma Twice

I Have Beaten Brain Cancer Twice - Joey Boats

Here is Joey Boats brain cancer survivors story.

Joey was diagnosed with a Pilocytic Astrocytoma in 2005 and after being in remission he was diagnosed again in 2013. After fighting again he won the battle. He has been cancer free now for over 6 years.  Having gone through a terrible ordeal, Joey intends to give back and help others.

I had the pleasure of interviewing Joey and hearing his plans going forward.

Hi Joey, how are you doing?

I'm doing excellent, I'm feeling healthy, strong, and young.

What do you do now in your life?

I work for a nonprofit organization called Toolbank. I also volunteer with another nonprofit called Team Rubicon. Because of my service with Team Rubicon I've been awarded two Presidential Volunteer Service Awards.

“I've been awarded two Presidential Volunteer Service Awards”

Who Is Toolbank?

Toolbank was started in Atlanta in the 90s and grew from  Toolbank Disaster Services,  they help other nonprofit organizations with utilization of tools in disaster response, with seven other affiliates including the one I work for in Cincinnati Ohio. At Toolbank, I run deliveries of  tools and like items to other non-profits in my city so they themselves can do projects to perform outreach in the community. My most memorable moment with Toolbank so far is when I was added to the staff this past spring.

Who Is Team Rubicon?

Team Rubicon is a veteran-led disaster response agency, I help with the logistical aspect of disaster response. Team Rubicon was started in 2010 by a man named Jake Wood, after the 2010 Haiti earthquake,  Jake just wanted to help those folks so he got some friends together, that he served within the U.S. Marines, and went through the Dominican Republic and out of their action came  Team Rubicon.   It's now grown into almost ten thousand volunteers of mostly military veterans and  also civilians and first responders.

“Ten thousand volunteers of mostly military veterans and also civilians and first responders”

Some of my most memorable moments with Team Rubicon are during every operation I go on! But the standouts are Operation Hard Hustle in Texas after Hurricane Harvey and Operation  Silver Sun in North Carolina after Hurricane Florence.   Team Rubicon is Global, with Team Rubicon USA, Team Rubicon Global, Team Rubicon UK, Netherlands, and Australia.

What motivates you?

My motivation is my chance to every day, make a difference, plus I have beaten cancer, TWICE!!!

Joey Boats Brain Cancer Story

Who is your personal hero or are your heroes?

I really don't have one person or persons I look to as heroes, but I've put the ethics of those I look up to and respect into my personality. That has helped with my willingness to serve, to make a difference and to stay healthy.

What would you say is the most interesting thing you’ve ever done?

Well 40 days after my second operation I ran a half marathon, I've free climbed several mountains in the American Rockies, I've sought the wisdom of the Navajo and the Lakota.

“I've free climbed several mountains in the American Rockies”

What is the toughest challenge a survivor faces?

Having a true support system, that comes with 100% support, love, and understanding.

What is next on your agenda?

To write a book, which is harder than it sounds.


Related Posts

I Survived a Brain Tumour and Breast Cancer

I Have A Diffuse Astrocytoma On My Brain Stem

My Son Was Diagnosed With A Ependymoma


Any advice for people or loved ones that get daunting diagnoses?

To Never give up, you're always in the fight.

Tell us something about yourself that people probably didn’t know… anything?

After seeking the wisdom of a Lakota priest I was given a name, He Who Flies with Hawks.


Conclusion:

What an amazing amount of opportunities Joey has come across and taken.

Have You Done Any Volunteering?

 

Other Personal Stories To Read:

My Brain Tumour Left Me Incredibly Positive

I Have A Diffuse Astrocytoma On My Brain Stem

Victoria And Her Meningioma Story

I Was Diagnosed With A Central Neurocytoma

Helpful gifts for a person affected by cancer or benign brain tumour

Follow:
ClaireB
ClaireB

Find me on: Web | Twitter

Claire Bullimore brain tumour Story
Helpful gifts for a person affected by cancer or benign brain tumour