Hi, I am Claire,
Why the heck would I want to get involved with brain tumours? Well, because being told you or your loved one has ‘a brain tumour’ is a life-changing event. I was told I had a brain tumour in 2008 when I was 25.
After months of being misdiagnosed and suffering from terrible headaches, change in my personality and my behaviour. I was getting very confused and forgetful, terrible ringing in my ears. Nausea, vomiting, visual disturbances and my speech was not correct. I was saying the wrong words.
In May 2008 I was diagnosed with a 10cm Intraventricular Meningioma and had to go through surgery to have it removed. I know the struggles that come with this devastating diagnosis and the life-changing effect it can have on a persons life.
History of Aunty M Brain Tumours?
I set up Aunty M Brain Tumours in 2011 because on my own journey I felt very alone, I never heard or met anybody who understood about brain tumours and post-surgery complications. Social media was only just getting going, and there were very few places to find support online for brain tumour sufferers, or survivors unless you searched the web really hard.
I started Aunty M Brain Tumours on the 23rd May 2011. It was my 3rd Cranniversary. I wanted to celebrate my 3rd year since my brain surgery (craniotomy) and start something new.
I set up a Facebook page to connect with others. This grew and I was soon on a number of other social media platforms with over 14,000 followers. In 2013 I was invited to be a radio presenter on a local station which was via podcast and was able to have a show dedicated to people affected by a brain tumour.
To show I am not just talking the talk, I also walk the walk. You can find me in a number of publications raising awareness of brain tumours. Such as The Sun, Choice Magazine, Best Magazine and Bella Magazine.
Aunty M brain Tuours have evolved over time and now is a social platform around the world.
Where can I connect with others on Aunty M Brain Tumours?
You can connect with others online and also help raise awareness of brain tumours by sharing your personal stories and getting involved with brain tumour campaigns.
Meet Others In The Private Facebook Group and make new friends.
I am here to inspire and motivate you. Let’s do this journey together.
Random Fact: Why Do I Interview People About Their Stories?
When I left education I went into recruitment as a Resourcer. I was the person reading through people’s CV’s and matching them with the right jobs. I would need to interview candidates and tidy up there resumes. So, interviewing people comes naturally to me. I am inspired every day by the people I meet and hear their stories.
Read Other Books Written By Claire Bullimore: